Oh, look, it’s January! Time to make resolutions I probably won’t keep! Time to renew my commitment
to a mental facility to do more writing, especially in my long-neglected blog!
This time, I have incentivized myself. I’ve purchased the domain “coffeeandlollipops.blog” AND made calling cards with that info, and the forwarding email “firstname.lastname@example.org”. (It’s clunky, but it’ll serve for now. Especially since I’ve already printed cards. But if you want to contact me, use that address!)
This is in anticipation of launching a big plan to, among other things, document my struggles, failures, and successes in helping my kids learn to eat. I’ve mentioned before that they have feeding issues, but it’s kind of long past “issues” now into “disorders”. As in, I feel safe diagnosing them both as having “SED” (Severe Eating Disorder), without the need of a medical professional to do it for me. Granted, SED is an umbrella term, but one that is becoming more widely known and accepted, as “SPD” (Sensory Processing Disorder) and “Autism Spectrum” have been.
Before anyone worries that I’m one of those WebMD parents who thinks they know better than doctors, I want to remind or inform you that my kids are not toddlers or speshul sneauxflaykes. They’re eight- and six-year-old boys who have been eating five foods or less since introducing solid foods, have been to a few years of OT and feeding therapy (with small progress), and who would rather starve themselves past the point of feeling hunger rather than try to learn to chew anything, including treats like Jell-O, ice-cream, or cookies.
If that doesn’t convince someone of the severity of this situation, nothing will.
They do love lollipops, though. I daresay it’s the only solid food my six-year-old eats. So there’s hope!
In addition to blogging here, I hope to start vlogging, as well, and might set up a separate blog the boys can contribute to in the far future, which will feature their own videos. I bought them an inexpensive action-camera set-up for Christmas so we can create cooking videos. I homeschool them, and realized that cooking classes would be a great way to learn all kinds of concepts, and my eight-year-old mentioned that it would be fun to put some of our cooking exploits up on a YouTube channel. (He’s been angling for a YouTube channel for months; this is one way I can cave to his request while also making it educational and limited in scope. If it were up to him, he would post videos of himself rambling on about everything and nothing, pacing back and forth in our cluttered living room, and I just can’t let him do that. I’m a mean mom for promoting meaningful web content. 😉 ) So watch this space for kitchen antics!
Before that can happen, though, I have to address another extremely severe issue in our house: Ridiculous Overabundance of Clutter (and dog hair). It has gotten so out of hand, I could ALMOST make it on the TLC “Hoarders” program. Yes, really. I am not exaggerating.
I’ve always been a messy person. I know now that it can likely be attributed to a level of ADD (and OCD, but not the clean kind) I’ve always had, but got out of hand after I had kids and lost my ability to keep up with it. Now, I fight fatigue and motivation every day, and can just manage to stay on top of most of my outside commitments, making the kids’ food (for home and travel), doing the dishes, and emptying the trash. This is compounded by the fact that my husband is on a nine-month deployment (Army, someplace that rhymes with “Little Beast”), and it’s winter, so depression and anxiety are at their highest, too. I admit I haven’t really done much school with the boys this year, even though it’s the first year I’ve had to declare to the school district that the eight-year-old is homeschooled.
I’m a hot mess, y’all.
Which is why I need to blog — or, rather, “document” — my journey back up the downward spiral I’ve been on for awhile. In about a week I’ll be leaving for the Feeding Matters Pediatric Feeding Conference, which I managed to talk myself into going to this year. I’m really looking forward to it, not only because it’s in Phoenix, AZ, in the middle of January. 😉 I’m hoping I’ll be able to network as well as learn some new things and gain more advocacy for our situation. I wasn’t happy with what I’ve had available to us in the past, but I’ll address that in a later post. For now, I need to go make lunch.
Here’s to a successful 2017! 🙂 Feel free to post your own resolutions, struggles, recommitments, etc., in the comments. Please refrain from advice at this point, however, though well-wishing is welcome. Soon I’m going to write a more comprehensive post about feeding disorders and the issues we’ve had to deal with, and why conventional advice for “picky” children just cannot work for us.
Thank you! See you again SOON!